Meet Braedon Ondos. Braedon is a 7 year old adorable little boy from Peters Township who lives with a very rare genetic disorder called Primary Ciliary Dyskinesia. PCD is characterized by chronic infections due to inherited defects in tiny hair like structures in the lungs, sinuses and ears called cilia, which can clean the accumulation of mucus and bacteria from organs. This rare disease affects less than 25 thousand people nationwide. Most cases are extremely difficult to diagnose and traet because they are so poorly understood.
Today, I invited Braedon to my studio because I wanted to take a great portrait of him for the upcoming fundraising event that will take place in Peters Township on August 16th. He wasn’t crazy about having his picture taken but he did a GREAT job! Check out his show! PLEASE help us by coming and enjoying this event with your family and help us raise money for the PCD foundation! I will be there with my camera and my children hoping to help the PCD foundation and the Ondos Family in any way that I can. Braedon is a cutie and about to enter the 1st grade at PV elementary with my daughter Christina ... please come and have some fun with us!
Join us on:
August 16th, 2008
Donaldson’s Croosroads’
Giant Eagle Parking Lot
9am to 3pm
You can get more information on this genetic disorder by visiting www.pcdfoundation.org
4 comments:
Wow. This child is a gift. his face tells a story and its been captured here. May God Bless himm.
What a great picture!! Boo looks like an angel. May your fundraiser bring knowledge and support for all that suffer with this illness. You are all in my prayers. I LOVE AND MISS YOU ALL VERY NUCH!!
Stacy
I admire the strength and courage that Braedon's parents provide. They are a source of inspiration an incredible example of family and love... We continue to keep you in our prayers and we wish you great success on August 16th.
Maria, Thank you for all your time and generosity. You are an amazing photographer. Thank you for photographing and spending such a special event with us. We will never forget you. May God Bless you always, The Ondos Family
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